After heroin deaths, Broome officials building overdose database
We are tired of waiting for the county to take action. It is long past time for them to be responsible in their roles to protect the public. See our letter to County Executive Jason Garnar below. Be sure to click the news links to see what he thought should be done PRIOR to being elected.
We have been calling on the county to track and report overdose deaths and reversals since August of 2015. Here we are, nearly two years later, still waiting.
Call County Executive Garnar today and ask him when he’ll start doing all the things he was demanding of the last administration.
June 25, 2017
Broome County Executive
60 Hawley Street
Binghamton, NY 13901
Dear County Executive Jason Garnar,
On June 24, 2017 the Village of Johnson City Police issued a warning about a surge in heroin overdoses, including three fatalities. We thanked them for their proactive approach in alerting their community. Due to their proactive approach, Truth Pharm and STAP worked together to immediately respond by advertising, promoting and handing out life-saving Naloxone kits during a three-hour time-slot on Sunday. Twenty-four people were trained and obtained kits.
This is what the response to a public health emergency looks like.
Also, due to their proactive approach, the news media published stories about the overdoses and the handing out of Naloxone kits, which caused hundreds of people in Broome County to engage in conversations about the opioid epidemic. In addition, hundreds of people were educated about: the dangers of using alone; the need to call 911; a particularly strong or ‘bad’ batch of heroin that was circulating; harm reduction practices they could use to reduce overdoses; and the lifesaving medication Naloxone. Conversations that our community desperately needs. In addition, two people reached out to Truth Pharm and will be placed into inpatient treatment tomorrow.
On February 23, 2017 you attended our in-depth presentation to local elected officials outlining the dire need for both care and harm reduction approaches in Broome County. We also made it clear that tracking of overdose data – both deaths and successful revivals – is the responsibility of our county government and needs to be done accurately, consistently and actively reported to the public.
We have seen zero progress on this front. We have been making requests for this information since August of 2015, we are approaching two years since then, over one hundred deaths and thousands of overdoses with no change to the system.
Prior to being elected as County Executive, you agreed that the community should be notified. We have communications from you to us directly stating so and ridiculing the prior administration for not being responsible in doing so. And you made your opinion public to the media. On August 12, 2016, WICZ started a report about overdoses with this line: “Broome County Executive Candidate Jason Garnar called for a public health warning on heroin overdoses Thursday night.” And later in the article included this as well, “Jason Garnar says it is a health risk when the public isn’t notified.” Garnar Calls for Public Health Warning Garnar Wants Better Accounting by the County
On August 11, 2016, in an article published by the Press & Sun Bulletin: “First and foremost, Broome County needs to declare a public health emergency,” said Garnar, the Democrat challenging Preston in the November election. But “what I’m more concerned about is it seems our county executive is not saying anything about this. We should be doing everything possible to get the word out there that something is out there that is killing people left and right.” The website for that article includes a video of you stating how important it is for the County Executive to release CURRENT information to the public in order to save lives. Garnar calls on Broome to Declare Opioid Emergency
It is nearly one year since you made those strong statements and you’ve been in office for six months. But, where is your action? Why aren’t you releasing notices to the public? You are now the one responsible to ensure the public is notified.
As we have in the past, we could provide multiple examples of other counties in New York State who are actively tracking and releasing overdose data, but we trust you can google and immediately find plenty of results just as easily as we can.
We also know this data already exists for the county. We recently learned that the county is planning to participate in a program to release all overdose data (deaths and reversals) to a mapping program run by the DEA. That mapped data will not be accessible by the public, but is utilized in drug investigations. We are beyond sickened to learn that the county is choosing to participate in an enforcement and further criminalization program as their priority over participating in issuing public health warnings and participating in harm reduction practices with data you ALREADY HAVE.
Your goal must be to save lives.
We are again requesting that the County Health Department immediately begin to take responsibility for counting the deaths of our loved ones due to substance use related causes and issuing that information to the public. This responsibility does not belong to the District Attorney, this is a health issue and belongs to our county health department.
We also want to remind you that funding from the state and federal government depends on accurately reporting both overdose and death data to state officials. We are being bypassed for funding, new programs and attention because our issues are not accurately reported.
Though it seems much of what was written in our letter of February 23, 2017, including working together cooperatively, has been ignored, we’ll attach the letter as a reminder of what we called for four months ago, please be sure to review request #3 which we’ll include below. The optimism we expressed in our letter is waning, but we as an organization continue to do the work necessary to save lives. You, as the County Executive, declared this opioid crisis a Public Health Emergency. With that declaration comes serious responsibility on your part.
Founder and Executive Director
cc: Governor Andrew Cuomo, NYS Attorney General Eric Schneiderman, NYS Commissioner of Health Howard Zucker
So, “what,” you ask “does a Rainmaker do?”
What does Truth Pharm do?
Well, Rainmakers are change-makers, game-changers, powerhouses, people who refuse to accept no for an answer. They are optimistic, driven and produce results. Despite current negative conditions, they work to overcome. When a challenging problem exists with no apparent or clear solution – a Rainmaker will find and create solutions! They will take action.
That’s a Rainmaker – and that is what Truth Pharm is made up of. People who will create change and WILL have an impact on this epidemic.
Per our mission: Truth Pharm works to raise awareness, reduce the stigma, educate the public and advocate for policy and law changes surrounding substance use and treatment.
And here is a summary of how we went about creating change in 2016!
Awareness and Outreach Events:
Community Response Action Plans:
Police & Criminal Justice Outreach:
Obtaining Treatment, System Navigation, Family Awareness and Education:
Grants & Fundraising:
*2016 was the first year of our 501c3. Since we did not have nonprofit status in 2015, no fundraisers were hosted, no donations were accepted or EVER collected. ALL efforts in 2015 were financially supported and provided by Founder and Director Alexis Pleus.
I wonder if you’ll bear with me to hear a personal story.
Last fall, I attended the FedUp Rally, Facing Addiction and Hill Day which were all back to back in D.C. All incredibly powerful events where I learned so much and was inspired by speaker after speaker.
But, believe it or not, the most inspiring 3 hours of the entire 5 days I was in Washington D.C. was spent in a room with 20 people pulled together by Nancy Carter Williams. Who were they? They were people hand selected by Nancy that she felt have accomplished incredible feats, have developed unique ways to raise awareness and were having a powerful impact on the opioid epidemic and BOY was she right! I was invited to speak and present for Truth Pharm and by the time it was my turn to speak, I felt minuscule in comparison to what I had heard from the people who went before me.
Two of the most inspiring people we heard from that day were two women from Kentucky. They told of a story about several bills being up for vote in Kentucky that everyone was sure would pass. They said they did the thing we all do – the shared the information on facebook, they made phone calls, sent emails and it seemed these bills would pass, after all, the state was facing an epidemic and these bills were SO important. When it came time for the bills to be voted on, they did not pass and the group was devastated. A group of moms decided the next session of the legislature, they would be at the capitol every day the legislature was in session and they would NOT leave until the bills passed. And they did just that.
I know many of us have different opinions about what can or should be done. There is a LOT Truth Pharm wants from our state government, but one thing I THINK we would all agree on is that currently, insurers are controlling how much treatment our loved ones get, and the amount of time is woefully low. We are seeing an average of 9 days being approved by insurance, which sets our loved ones up for a 90% relapse rate.
There is a bill in our State Senate AND Assembly this year that we have been calling “The 90 Day Bill”. Remarkably, the bill that was written in the Senate, was written by a Republican and our Senate is Republican led and the bill written in the Assembly was written by a Democrat and our Assembly is Democrat led.
This means, two things. 1. a shorter span of time to move the bill forward and 2. the bill has a fantastic chance of passing.
But, it will NOT pass this session unless we can get the bill to move forward. And to get it to move forward, we need face to face time with our political leaders asking them to please sign on as cosponsors and to urge their colleagues to move the bill forward.
Truth Pharm has taken 4 trips to Albany and we have several more dates coming up: May 10, 11, 24 and June 2 and 24th and we may add more days. You could go with us, meet us there, plan your own trip, go separately, whatever you like, but we should all work together to make this happen. We can only do this with everyone’s help.
People were telling us yesterday we had a good chance of getting this passed ‘next session’… let’s make it happen THIS SESSION!
If you’d like to be involved, please fill out this survey: Click Here for Survey.
To see Truth Pharm’s Advocacy Agenda for 2016, click here.
Pleus felt compelled to start an awareness and advocacy organization, Truth Pharm, which has made its way to the national front. They work to raise awareness, reduce stigma, and advocate for programs and policy changes. They have enrolled four police agencies to date in the Gloucester Angel Program, have gotten many people into treatment, and are providing Community Response Action Plans across upstate New York.
“We, like many others, believe the solution to this epidemic is multi-faceted. However, we believe the time for action is now… It isn’t time for a band aid. It’s time for a tourniquet,” she says.
Pleus says what is needed from our lawmakers now is:
1. Humane, medically assisted detox.
2. Same day evaluations.
3. Immediate access to treatment.
4. To require insurers to pay for the type and length of treatment known to be effective.
5. To increase insurance reimbursement rates so that treatment centers can afford to open and operate in New York.
“Everything else is ancillary and can wait. But, we cannot wait for these things,” she adds.
Read entire article here: http://www.chronicle-express.com/article/20160401/NEWS/160339992/?Start=1
What a great experience to be interviewed by Susan Arbetter on the Capitol Pressroom in Albany. I’ve been a long time fan and after being interviewed by her, I realized why her show is so great. She’s an amazing interviewer. She is personable, caring, compassionate and incredibly well prepared for her interviews. She knows how to keep things moving without making you feel rushed and she helps ensure you get to make the point you were there to make.
I can’t wait to go back!
Listen to the interview here.
2/1/16 – Alexis attended the Community Foundation of South Central, NY grant workshop.
2/3/16 – Received our formal letter from the IRS approving our 501c3.
2/4/16 – Met with Pat Raube, Pastor of the First Presbyterian Church in Endicott regarding the rectory that may be vacated soon. Pat is interested in utilizing the house for something the community needs. We discussed the idea of the Flight House which she was excited by the prospect of. She will be performing a community needs assessment and will also be discussing with church members.
2/4/16 – Very excited a volunteer, Donna Wood-Craig has officially accepted the position of Truth Pharm’s Angel Volunteer Coordinator for the Oxford Police Department’s Road to Recovery Program.
2/8/16 – Had a phone interview with Michael King, Director of Outreach for Facing Addiction, the national organization for a position on their national outreach committee.
2/8/16 – Truth Pharm Board of Directors Meeting – Penny Stringfield, Rusty Griffiths, Tom Jackson and Alexis Pleus in attendance.
2/8/16 – Truth Pharm Volunteer meeting with 16 in attendance to discuss news, fundraising, grants and Amy Cruz’s “The Wings Project” proposal.
2/9/16 – Contacted by District Attorney Steve Cornwell to assist with this new Operation SAFE Program. He’s in need of volunteers to make calls for treatment placement and would like to partner with Truth Pharm.
2/11/16 – Dataflow donated all the printing services for our awareness event in Hancock.
2/11/16 – Amy Cruz attended Yvonne Lucia’s open house for her creative grief works open house.
2/12/16 – Several Truth Pharm Rainmakers attended the training session at District Attorney Steve Cornwell’s office to be trained in making phone calls for treatment placement through Operation SAFE.
Political Advocacy (harvesting results):
2/2/16 – Alexis participated in a live teleconference with Michael Botticelli, Director of National Drug Control Policy at the White House and Richard Frank, Assistant Secretary for Planning and Evaluation at the U.S. Department of Health and Human Services regarding Obama’s announcement earlier in the day of $1.1 billion in 2017 budget.
2/2/16 – Blog post regarding our visit with Donna Lupardo and our plans to work together. Donna Lupardo has stayed in touch over the past two weeks sending us articles we may be interested in.
2/4/16 – Interviewed by WICZ to comment on the NY Bed Availability Dashboard announced by Governor Cuomo 1/31/16.
2/9/16 – Met with Michal Kirsch, retired pediatrician to discuss my idea of requesting an executive order of the president and governor. He believes my assessment of the current situation is accurate and he is willing to proof read and help provide supporting data.
2/9/16 – Wrote to Governor Cuomo’s office regarding the Bed Availability Dashboard and the inaccurate information provided in addition to the fact that it is not being updated.
2/10/16 – Assemblyman Cliff Crouch attended our Awareness Event in Hancock, NY. Thank you Assemblyman Crouch!
2/11/16 – Received exciting news from Senator Thomas O’Mara’s office that we have been selected to provide oral testimony at the Senate Joint Task Force on Heroin and Opioid Addiction Roundtable in Penn Yan on 2/23/16.
2/1/16 – Met with Hancock representative from the Mayor’s office, Police Chief, Fire Chief and Director of Ambulance Services to discuss systems in place. Police are carrying Naloxone. Ambulance services is an advanced life support agency, so they have it as well. The fire department is currently working on registering and carrying. The police chief has inquired in the past about having a prescription drop box and offered that he would look into it further. We suggested they might want to contact Walgreens which is moving into the Rite Aid store soon because they are supposed to have prescription drop boxes to let them know there is a need. The Mayor’s office offered to provide a robocall regarding our event next week. We’ll send them the data. It was suggested we contact the Hancock Telephone Company to have an announcement played during the weather.
2/1/16 – Directed an Oxford woman to free Naloxone training at STAP via an email inquiry from her and she got trained and got a kit.
2/3/16 – Interviewed by Don Mathisen of WIOX radio an NPR station in Roxbury, NY. The program will air next week.
2/5/16 – Met with Sarah at the Volunteers of America shelter in Binghamton. She would like Truth Pharm to provide awareness education for her staff.
2/7/16 – Met with Kim Myers to present our Best Practices for Hospitals and Medical Providers. Kim will be presenting this to the CEO and members of the board of directors at Lourdes. We also discussed The Flight House and Kim is interested in assisting with fundraising if we move forward with the project. She asked that we prepare a program outline, determine zoning requirements, get insurance quotes and operating expenses.
2/8/16 – Wrote “Framing an Overdose” about a boy, Dajen Edwards who died of an overdose in Binghamton on 2/6/16.
2/9/16 – Alexis, Dannielle Swart and Al Roberts attended the WSKG community Conversation on the Heroin Epidemic.
2/10/16 – Rainmaker Dannielle Swart attended the Community Awareness event in Sidney, NY.
2/11/16 – Held our first Awareness Event for our Community Response Plan in Hancock, NY. Was very well received with about 70 people in attendance and excellent media coverage including the Kingfisher Project, WICZ, The Walton Reporter and the Hancock Herald. Assemblyman Cliff Crouch surprised us and came and spoke for a short time to give a summary of his efforts on this issue.
2/11/16 – News story by WICZ about the Awareness Event in Hancock, NY.
2/12/16 – Met with Melissa Martin at the counseling center at SUNY Broome to discuss ways we can partner together. She will invite us to provide some awareness information at upcoming common hour programs.
36 facebook posts of news articles, research reports, political advocacy, 8 awareness or fundraising events, 1 Memorials to lost loved ones, 3 stories of recovery, 7 pictures or blog posts, 2 memes. Over 87,000 people reached through posts. Over 800 shares. Now 2443 “Likes” on public facebook page. 135 followers on Twitter. 11 loved ones added to the Map of Lost Loved Ones.
Treatment Access, Recovery and Support for Individuals and Families (growing recoverees):
2/3/16 – Helped send a gal to long term treatment out of the state.
2/4/16 – Visited a 20 year old young man at the Broome County Jail per his family’s request and because he is a friend of our family to see if he’s interested in treatment. He is, so we contacted the District Attorney. We also told the family to write letters on his behalf to the judge, the DA and the Public Defender.
2/4/16 – A mother contacted us 2/2/16 – she took her daughter to Binghamton General after learning she was a heroin addict and she (the daughter) wanted detox. The hospital did not keep her. Sent her home after a couple hours and suggested he call New Horizons for an evaluation which would take several days to get. 2/3/16 we emailed her and let her know to take her daughter for a fast track appointment (She was never told about this possibility). She could not get her daughter going until late morning – New Horizons told her it was too late for a fast track appointment. The same day she had extreme anxiety and pain as she was trying to detox herself at home. The mother took her to the ER again and again they sent her home. 2/4/16 Truth Pharm got long term treatment lined up out of town young woman (20 years) who was willing and anxious to go. The mother took her to the New Horizons fast track evaluation hoping she could at least get detox until she went to long term treatment. New Horizons discouraged the daughter from leaving the area for long term treatment and instead offered her 14 days of inpatient treatment and suggested afterwards, she could attend New Horizons outpatient treatment while staying at Fairview. The daughter accepted the offer.
2/9/16 – Spoke to a young man about his options. He had a warrant for his arrest. He decided to turn himself in and we told him we would contact the DA for him which we did. The DA said he will advocate for drug court for him and to have his mom write to his assigned counsel and the ADA and ask for the same. We explained to the DA this young man truly needs long term treatment to start. He said that can be arranged and for the family to advocate for it.
2/10/16 – Helped a 22 year old Broome County gentleman get a bad at Syracuse Behavioral Health. He was not able or willing to leave the area for treatment, so opted for local. We checked the bed availability dashboard which listed 5 beds for medical detox at Syracuse Behavioral Health. They did a phone screening and said he qualified for treatment, but then told him it would be a three week wait. We contacted them to ask why a 3 week wait when the Dashboard listed 5 beds. We were contacted shortly after and told a bed ‘opened up’ and he could be admitted the next day. He planned to go for as long as they would keep him. Once he got there they said actually, insurance won’t cover your stay because ‘it’s elective’ to be detoxed, so you’ll have to pay $400 per day out of pocket. He decided to stay anyways. He stayed 26 hours and said the staff had such bad attitudes and treated everyone like second class citizens, he could not take the mistreatment and left. He said 90% of the people there are court mandated and the staff treat the patients poorly.
2/11/16 – Received an update from a Syracuse mom who originally contacted us 1/17/16. Her son was notified he is 1 – 2 weeks away from a bed at St. Christopher’s. Almost 4 weeks’ wait time for treatment because he does not have private insurance.
2/12/16 – Got treatment lined up for gentleman who was housed with Opportunities for Broome who requested help with the District Attorney’s program, but they could not find treatment for him quickly enough. Discussed with volunteer who was working on placement from DA’s side as well as the DA who said to go ahead and start a fundraiser and the DA’s office would help spread the word. 2/12/16 started the fundraiser for 55 year old gentleman to go to treatment, lined up detox for him in Long Island. 2/13/16 picked the gentleman up and took him to the bus station to go to Long Island to be admitted into the medical detox program there.
2/12/16 – Had several rainmakers attend the District Attorney’s call for help meeting for his SAFE Program.
Broome County Losses:
2/6/16 – We learned of a 22 year old young man who had just finished New Horizons inpatient treatment and was staying at Fairview who relapsed and was to return to ACC. He chose not to go in and overdosed that night. He did not make it. Rest in peace young man.
2/11/16 – A 26 year old young man lost his life to an overdose. He was a father of two children.