Our June 25, 2017 Letter to Broome County Executive Jason Garnar

We are tired of waiting for the county to take action. It is long past time for them to be responsible in their roles to protect the public. See our letter to County Executive Jason Garnar below. Be sure to click the news links to see what he thought should be done PRIOR to being elected.

We have been calling on the county to track and report overdose deaths and reversals since August of 2015. Here we are, nearly two years later, still waiting.

Call County Executive Garnar today and ask him when he’ll start doing all the things he was demanding of the last administration.

June 25, 2017

Jason Garnar
Broome County Executive
60 Hawley Street
Binghamton, NY 13901

Dear County Executive Jason Garnar,

On June 24, 2017 the Village of Johnson City Police issued a warning about a surge in heroin overdoses, including three fatalities. We thanked them for their proactive approach in alerting their community. Due to their proactive approach, Truth Pharm and STAP worked together to immediately respond by advertising, promoting and handing out life-saving Naloxone kits during a three-hour time-slot on Sunday. Twenty-four people were trained and obtained kits.

This is what the response to a public health emergency looks like.

Also, due to their proactive approach, the news media published stories about the overdoses and the handing out of Naloxone kits, which caused hundreds of people in Broome County to engage in conversations about the opioid epidemic. In addition, hundreds of people were educated about: the dangers of using alone; the need to call 911; a particularly strong or ‘bad’ batch of heroin that was circulating; harm reduction practices they could use to reduce overdoses; and the lifesaving medication Naloxone. Conversations that our community desperately needs. In addition, two people reached out to Truth Pharm and will be placed into inpatient treatment tomorrow.

On February 23, 2017 you attended our in-depth presentation to local elected officials outlining the dire need for both care and harm reduction approaches in Broome County. We also made it clear that tracking of overdose data – both deaths and successful revivals – is the responsibility of our county government and needs to be done accurately, consistently and actively reported to the public.

We have seen zero progress on this front. We have been making requests for this information since August of 2015, we are approaching two years since then, over one hundred deaths and thousands of overdoses with no change to the system.

Prior to being elected as County Executive, you agreed that the community should be notified. We have communications from you to us directly stating so and ridiculing the prior administration for not being responsible in doing so. And you made your opinion public to the media.  On August 12, 2016, WICZ started a report about overdoses with this line: “Broome County Executive Candidate Jason Garnar called for a public health warning on heroin overdoses Thursday night.” And later in the article included this as well, “Jason Garnar says it is a health risk when the public isn’t notified.” Garnar Calls for Public Health Warning   Garnar Wants Better Accounting by the County

On August 11, 2016, in an article published by the Press & Sun Bulletin: “First and foremost, Broome County needs to declare a public health emergency,” said Garnar, the Democrat challenging Preston in the November election. But “what I’m more concerned about is it seems our county executive is not saying anything about this. We should be doing everything possible to get the word out there that something is out there that is killing people left and right.” The website for that article includes a video of you stating how important it is for the County Executive to release CURRENT information to the public in order to save lives.  Garnar calls on Broome to Declare Opioid Emergency

It is nearly one year since you made those strong statements and you’ve been in office for six months. But, where is your action? Why aren’t you releasing notices to the public? You are now the one responsible to ensure the public is notified.

As we have in the past, we could provide multiple examples of other counties in New York State who are actively tracking and releasing overdose data, but we trust you can google and immediately find plenty of results just as easily as we can.

We also know this data already exists for the county. We recently learned that the county is planning to participate in a program to release all overdose data (deaths and reversals) to a mapping program run by the DEA. That mapped data will not be accessible by the public, but is utilized in drug investigations. We are beyond sickened to learn that the county is choosing to participate in an enforcement and further criminalization program as their priority over participating in issuing public health warnings and participating in harm reduction practices with data you ALREADY HAVE.

Your goal must be to save lives.

We are again requesting that the County Health Department immediately begin to take responsibility for counting the deaths of our loved ones due to substance use related causes and issuing that information to the public. This responsibility does not belong to the District Attorney, this is a health issue and belongs to our county health department.

We also want to remind you that funding from the state and federal government depends on accurately reporting both overdose and death data to state officials. We are being bypassed for funding, new programs and attention because our issues are not accurately reported.

Though it seems much of what was written in our letter of February 23, 2017, including working together cooperatively, has been ignored, we’ll attach the letter as a reminder of what we called for four months ago, please be sure to review request #3 which we’ll include below. The optimism we expressed in our letter is waning, but we as an organization continue to do the work necessary to save lives. You, as the County Executive, declared this opioid crisis a Public Health Emergency. With that declaration comes serious responsibility on your part.

  1. County Departments that responsibly track and publicize data in a timely manner including:
  • Naloxone uses by all departments and the number of doses required
  • Overdose deaths
  • Deaths by other causes, but linked to substance use
  • Criminal acts related to substance use disorders
  • Incarceration rates related to substance use disorders
  • Success rates of various forms of treatment
  • A public calendar of all events offered by providers, support groups and grassroots organizations
  • A comprehensive list of treatment options, modalities and services within our region, allowing individual organizations to add their information and website links

Sincerely,

Alexis Pleus
Founder and Executive Director

cc: Governor Andrew Cuomo, NYS Attorney General Eric Schneiderman, NYS Commissioner of Health Howard Zucker

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Our Letter to Middletown, Ohio Town Councilman Dan Picard

It is nearly impossible to wrap our heads around first the ignorance of this man, but second the cold, calculated, cruel nature. Please have a watch of this video: http://www.journal-news.com/news/middletown-council-member-can-stop-responding-overdoses/PUUgYB815ROOGRxIP28bTP/

Our response is below. We urge you all to send your own response. Here are the email addresses for Middletown’s government officials: http://www.cityofmiddletown.org/council/members.aspx

Mr. Picard,

We are a nonprofit organization that is fervently committed to reducing the stigma associated with substance use disorders, advocating for policy change on behalf of those that suffer with them, and raising awareness in hopes that educating our communities will help to reduce substance related death by means of rapid response, implementation of health and human service protocols, and, ideally and ultimately, recovery.

In short, our goal is to save lives so,needless to say, we were more than appalled by your recent proposition to refuse medical treatment to overdose patients. It pains and infuriates us to see how easily you have turned human lives into dollar signs and an impact on your budget.

We understand that you have decided against running for re-election. While that may lessen your interest in public opinion, it does not erase your responsibility to the people you currently serve. To suggest that you withhold emergency medical response to overdose patients is manslaughter at best and premeditated murder at worse. You won’t be “teaching them a lesson” or “making them afraid to overdose in Middletown.” You will be directly contributing to the exponential increase of deaths in your community. We will be sure to empower your community with the information they need to sue you and the entire town government if you choose to take this path for every life that is lost.

One key factor you are failing to recognize is that substance use disorders are exactly that, disorders. They are medical conditions that, particularly in cases of Heroin/Opiate use disorders, vastly alter brain chemistry. They compel the individual to use without “reason”. They convince the individual that using is a matter of life and death. To propose that you can withhold treatment, actively participate in the neglect of your citizens, and sit idly by as you watch the massacre that you created in the name of reducing use in your community is ignorant beyond words.

You have chosen the path of, “let them die and that will teach them a lesson.” The fact that you can even ponder this concept, much less suggest its implementation, is disgusting and sadistic. Your statements and suggestions come dangerously close to murder-for-hire. You have declared yourself as the Iceman, willing to trade lives for dollars, and we do not intend to mince words for the sake of courtesy as you have not extended courtesy to those around you.

We hope those in your family, those in your community, and those that share your responsibility to Middletown by holding public office do their very best to minimize the damage you intend to cause. We hope that the nurses, lawyers, public officials, and citizens that suffer quietly with these tremendously difficult disorders stand in firm opposition against you and any like you that consider human life expendable. More than anything, we hope Middletown can find a way to move forward in the face of this epidemic despite your best attempts to set them back.

As a public servant, your job is to serve. To serve is to find the resources necessary to keep your citizens safe and healthy. A more constructive and appropriate use of your time would be to compel your governor, your higher elected officials and the federal government to bring in the help necessary to save lives – not just with Naloxone, but with compassion, harm reduction and treatment.

Mr. Picard you are but one man. You may be a disturbed and misguided man but, you are only one man. There are many of us, and we will never stop fighting to save lives. The people you intend to let die are members of our families. We will always stand with them. Always.

Signed,
Alexis Pleus on behalf of all of the Rainmakers and 5,000 followers of Truth Pharm
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SE Fighting Back – a Branch of Truth Pharm

SE Fighting Back is a community-based volunteer group dedicated to responding to the heroin and opioid addiction problem in the Sherburne-Earlville School District communities including Sherburne, North Norwich, Smyrna, and Columbus townships in Chenango County and Lebanon and Hamilton townships in Madison County.  Since its formation, SE Fighting Back has become a subsidiary of Truth Pharm, a nonprofit addiction awareness organization in the Southern Tier, to take advantage of Truth Pharm’s resources and knowledge of the issues surrounding the heroin and opioid crisis.

SE Fighting Back Goals
– To raise awareness and educate the public

– To promote prevention, harm reduction and recovery in the S-E communities

2016 Events and Activities Accomplished by SE Fighting Back:

Community Resource/Needs Assessment

Naloxone Trainings

June 16 in Sherburne

October 18 in Smyrna

Forums

April 1 in partnership with SE High School – Assembly for students with impact panel
May 23 in Sherburne – Public awareness event with impact panel

June 21 in Sherburne – In-depth education night including round table discussions

“To Love an Addict” Support Group Initiated – Locations in Norwich and Sherburne on the 2nd and 4th of each month

1st Responder Resource Card – Created for Chenango County and distributed to police, ambulance and fire organizations

Discussions with Mayor Acee of Sherburne and Chenango County Sheriff Cutting to promote formation of a countywide PAARI program.

Provide support to individuals in Chenango County seeking help for themselves or a loved one.

2017 Events and Activities Potentially to Include:
Additional Naloxone Trainings

Community awareness/ education forum(s)

Prescription drug “take-back” day

1st Responder resource card for Madison County
Event in partnership with SE Central School to raise awareness and promote prevention

Initiate Recovery Coach resources for the community by sponsoring individuals to take training

Develop countywide PAARI program in Chenango County
Continued support for individuals seeking rehab and/or integrating back into the community

For More Information find us on Facebook at facebook.com/SEFIGHTINGBACK or email sefightingback@gmail.com. Information about Truth Pharm can be found at truthpharm.org or by emailing truthpharm@gmail.com.

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Our Letter to the Senators of Maine – Overturn LePage’s Veto of the Naloxone Legislation

Below is the letter we sent to the senators of Maine urging them to overturn the veto by Governor LePage of the Naloxone Bill L.D. 1547 that would have allowed pharmacists to dispense Naloxone without a prescription in addition to expanding access to Naloxone by Fire Departments and Police Officers.

In Governor LePage’s veto he states that Naloxone “serves only to perpetuate the cycle of addiction” clearly indicating that his preference would be to allow them to die. He also stated in his official veto that “Naloxone does not truly save lives; it merely extends them until the next overdose.”

Apparently Governor LePage has never met anyone in recovery. We have. We believe in recovery and we know recovery is only impossible for those who are not living.

Here is our letter:

Dear Senator,

We are a national organization working to raise awareness, reduce stigma, create and implement programs and advocate for policy changes to have a profound impact on the opioid crisis.

That’s a very long way to say, each and every day we are comforting mothers, fathers, brothers, sisters and the CHILDREN of people who are overdosing and dying.

Each and every day we are working to support those in recovery.

Each and every day we are scrambling to find ways to save the lives of those addicted.

Each and every day we are working to convince people who are addicted that their lives matter.

Between their addiction which tells them otherwise, a society that stigmatizes their existence, a criminal justice system which criminalizes their disease and state and national policies that do not demand the required medical attention as any other illness, it is hard to find ways to convince them that their lives DO matter.

The current system in the United States is leaving our children to die. People with a life-threatening, debilitating and deadly disease that can kill them in an instant if left untreated are being turned away from treatment within hours of a near death experience due to lack of treatment availability, the greed of insurance companies, reluctance of medical providers to take responsibility and lax laws protecting people who are addicted.

How does this go on? Stigma. Our nation seems to believe these lives are not worth saving. Perhaps words come out of politicians mouths declaring differently, but what do the actions show? The actions show, laws can be changed next year, treatment can be available some day and it doesn’t matter that we are losing over 130 lives each day – we’ll keep losing them while we figure this all out.

Then along comes Governor LePage who does not feign words, does not pretend he cares; he flat out, blatantly says, “these lives are not worth saving.”

This seems ghastly to so many. This seems like an outrage. It would seem to many, this can’t be real, WHO would think this way? WHO would say such a thing.

Those of us on the front lines say, “Welcome to our world.” Between the actions and inaction of state and federal governments and the comments we see on news articles daily – and the fact that our children are literally dying; Governor LePage simply said out loud the stigma we and those addicted are faced with every day. The message in our nation today is loud and clear – you don’t think our children’s lives and you don’t think the lives of those of us addicted are worth saving.

And then people wonder why so few can pull themselves into recovery when this is the message they are given.

We need you to stand up and SHOW us this is not true. We beg you today to send a different message.

What Governor LePage has done is outrageous and the last thing we need is yet another message out there to add to the impression that addicts lives don’t matter.

We know they do.

The grief over losing my son matters.

The grief of the mothers and fathers of over 250,000 lives lost since 2010 matters.

The many volunteers who work for our organization who are living in recovery and have their lives back – their lives matter. For several of them, Naloxone IS what gave them that second change.

The 23 million plus people living in recovery in the United States matter.

And the lives of over 20 million people still struggling with addiction in the United States today – MATTER.

Please send a clear message that you believe this to be true. Please override the veto of LD1574.

We will be watching the vote so we can let Mainers and all of the United States know which of you believe our children’s lives are worth saving.

Thank you sincerely,
The entire team at Truth Pharm

Please join us in compelling the senators to overturn the veto.  Please send letters ASAP. They vote 4/29/16

If you don’t wish to write your own letter, here is a sample letter developed by “Young People in Recovery” that you can send:

***LD1574 Veto Override Email Template***
Please share
Dear Sen. ________,
I am writing to implore you override the vetoing of LD1547, “An Act To Provide Access to Affordable Naloxone Hydrochloride for First Responders”.

There is no evidence to support the claim that Naloxone increases drug use, and studies show the exact opposite. Having access to Naloxone saves lives and increases the potential for a transition in to treatment, whereupon people frequently find recovery and sustained abstinence.

It is imperative to allow for this life saving opioid reversal medication to be made available to those that need it. With the rural nature of the Sate of Maine, often the first on the scene to a person that is experiencing an overdose, and the person that will administer the Naloxone, is a family member or friend. Empowering them with tools to assist in the reversal and transition into recovery, is paramount.

We have the opportunity to join the rest of New England, and dozens of other states across the U.S., in increasing the potential for someone to enter recovery, heal with their family and friends, and rebuild their lives in the community. For those in charge of the safety and wellbeing of the public, this can and should be a priority.

As a person in recovery, a voter, and community member, I thank you for your attention to this important issue and again urge you to override the veto of LD1547.

Sincerely,

(your name)

Go to this page: http://legisweb1.mainelegislature.org/…/senator-i…/senators/

At the top of the page, there is an excel file you can download that has all of the senators’ email addresses in it. You can even copy them all at once and paste them into the “To” field of your email.

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Mapping Our Lost Loved Ones – a Note from Jeremiah Lindemann a Rainmaker in Colorado

JT_2016

If you are visiting this page you are probably well aware of the Opioid Crisis that is happening in our Country. It is effecting far too many families. It effected me too- I lost my little brother J.T. J.T. was the most charming person you would ever meet and could light up any room with laughter. He was my best man at my wedding and many people considered him their  best friend.  He became addicted to powerful painkiller called OxyContin. Before 2007 I had no idea what OxyContin was. After hearing many more stories similar to my brother’s on the news I decided to become involved.

In my daytime job I am a geographer that works for Esri- the leading mapping software company.  I wanted to apply those skills and technologies to help get the word out. There is a definite stigma about people who use drugs. This storymap “Celebrating Lost Loved Ones” shows a very small sample of people who have been lost to the epidemic. Their picture has a bio with details about what made them special.

The map is embedded here on TruthPharm:
http://truthpharm.org/remembering-loved-ones/

Here is the form to submit your loved one:

Memorial Submissions

The Lost Loved Ones map started roughly a year ago and now has over 150 contributions, really a tiny fraction of what is occurring.  However, it illustrates that this problem is happening everywhere, to really great people.  More mapping is being done around the epidemic as well and can be found in this gallery:

http://stoprxabuse.maps.arcgis.com/apps/PublicGallery/index.html?appid=74fb3b49c4b542b780326d10ed45bced

Gallery2

Some of the other maps are demographic maps that look at deaths by county, states that have Prescription Drop Off Locations, where Naloxone was used to save a life, and where over-prescribing is taking place that will likely lead to more problems.

Maps are a great communication tool – I hope you find them useful in helping get the word out about this epidemic to help drive more change.   Thank you TruthPharm for all that you are doing!

Jeremiah Lindemann

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Rainmakers’ Report 1/17/16 – 1/31/16 – It Even Rains in Winter!

1/17/16 – Our website was updated with many improvements including Jeremiah Lindeman’s Celebrating Lost Loved Ones Map.

1/17/16 – Our first blog post – The Rainmakers’ Report.

1/19/16- Met with Jack Juran, Coordinator, Tioga County Drug Court – we met to get an overview of Tioga County’s Drug Court process and we are VERY impressed! Jack also invited us to prepare a presentation to give at their weekly meeting which will include the Tioga County District Attorney, Public Defender, Tioga County Sheriff, Head of Probation and Drug Court Coordinators.

1/19/16 – Attended our first TCCASA meeting for their Tioga County Addiction Task Force. We were offered a seat on this task force and have accepted. We will be assisting them with many of their efforts in the future. We were provided an update of what they have done to date. We were also offered the opportunity to write a summary about Truth Pharm to be included in their next news letter.

1/19/16 – We’ve received the final list from Assemblyman Crouch’s office of which EMS agencies are carrying naloxone and which are not so that we can start our outreach to them.

1/19/16 – Our 501c3 Application was submitted.

1/19/16 – Asked to be on panel of planners for Genesee County’s Crime Victims Assistance Week and to be one of the speakers for their conference. Also asked to coordinate Chief Campanello’s attendance and speaking engagement. Working on that.

1/19/16 – Asked to speak at Afton Awareness event on March 9 as “Parent Affected”.

1/20/16 – We met with Jeanette Tolson who is a private practice social worker. We discussed Jeanette’s experience in the addiction and recovery treatment world and Truth Pharm’s Core Values and areas of focus. We decided Jeanette’s and our core values are quite inline! Jeanette has graciously offered her professional training services for our upcoming Angel programs and is also willing to be a speaker at awareness events. This is an exciting partnership!

1/20/16 – We met with Tom Jackson and Benjamin Bergman. They have offered some legal expertise to us in addition to some ideas we’ll be working on together! They have also joined our board of directors which is a very exciting announcement.

1/20/16– Executive Committee Meeting

1/24/16 – Received commitment from Refabulous Furniture they will donate furniture for Oxford Police’s Community Recovery Room.

1/25/16 – We had our Rainmaker Meeting with 18 in attendance! Plans for our trips to Albany were discussed. Dannielle Swart provided a nice concise presentation on how laws are made in Albany and an overview of how to lobby to advance policy.

1/26/16 – Alexis Pleus, Michelle Ericitano and Daniel Rippe provided interviews and a response to the New York State Assembly Minority Task Force’s report on the Heroin Epidemic.

1/26/16 – Met with the Oxford Police and three volunteers interested in possibly running our Angel Program for the Oxford Police. It was a fantastic meeting and they have accepted! Sarah Francis, Donna Wood-Craig and Connie Barnes are going to be our Angel Program Leaders for the Oxford Police Department!

1/26/16 – Truth Pharm and the Oxford Naloxone training and the Angel Program featured in an article in The Daily Star newspaper.

1/26/16 – Truth Pharm and the Oxford Naloxone training and the Angel Program featured in an article in The Evening Sun newspaper.

1/27/16 – We provided a resource table at the Windsor High School Awareness event.

1/28/16 – We participated in a nationwide conference call to form committees to plan the next Facing Addiction Rally in Washington DC.

1/28/16 – Attended a webinar training to use SBIRT with Teens.

1/28/16 – Co-Hosted a community Naloxone training in Oxford, NY with the Oxford Police Department and Southern Tier Aides Program. 47 were in attendance. WICZ provided news coverage.

1/29/16 – We met with the new Broome County District Attorney, Stephen Cornwell. We listened to his ideas and plans for the future and heard his beliefs about addiction and the criminal justice system. We felt his values are well aligned with ours! He told us about many of his future plans, most of which we cannot discuss openly yet, but we are very excited about them. We told him about some of our plans and offered to partner on future projects. We also established that we will have an excellent working relationship with him in the future.

1/29/16 – We met with Donna Lupardo and provided our List of Changes Needed in New York State, our Core Values, Strategic Areas of Focus and provided our comments on the Assembly Minority’s Heroin Task Force Report. She was excited and thankful to have the data. She will use it to make connections and discuss with her colleagues. We discussed the ties of the heroin/opioid epidemic to the affects on children in New York which is a topic she champions. We would like to have members of Truth Pharm follow up on this with her some more. She provided a legislative session calendar and suggested dates for us to be most effective in Albany. She also offered to send us a list of people we should target seeing while we are there. She stressed that making appointments ahead of time is imperative.

1/30/16 – Alexis, Amy Cruz and Kim Myers met to discuss several ideas. This was an exciting meeting. Amy is putting together a proposal for an idea she has which will be an amazing and compassionate service to those impacted by deaths due to substance related causes. More to come in the future on this. We all discussed current issues with access to treatment. We also discussed our need for The Flight House.

38 facebook posts – Awareness Events, Naloxone Events, Informative Articles, Memorials to lost loved ones, stories of recovery. Over 30,000 reached. Now 2342 “Likes” on public facebook page. 108 followers on Twitter.

Treatment Access, Recovery and Support for Individuals and Families:

  • We talked a family through accessing treatment in New York State. They called Conifer who had no open beds, but gave them a list of other facilities. He was promised medical detox at St. Peter’s in Albany. The family took him, he was admitted and released 2 days later with a referral to AA meetings and an evaluation potentially for outpatient. He begged the facility to keep him and reported he was not ready to abstain without further inpatient help. Truth Pharm offered help with placement out of state, family declined.
  • A Rainmaker’s son was admitted at Conifer for their 28 day inpatient treatment, but was only kept for 3 days due to insurance denying the claim for further treatment. He was sent home. We recommended filing a complaint with OASAS and the Attorney General. She called OASAS and they told her he was lucky to get that because they’re doing away with detox in New York soon anyways.
  • The son’s (referenced above) girlfriend was admitted to Conifer for their 28 day program, but was only allowed 7 days of treatment.
  • We assisted a family in advocating to the DA, PD and Judge to have their daughter held in jail rather than released from court until they could find treatment for her. They were successful in having her held in the Broome County Jail. Unfortunately, he was locked in her cell while in severe withdrawals, had a seizure, fell, gashed her head and was hospitalized. We helped the parents communicate with CARS to see about placement with them, but their waiting list is 4 deep. New Horizons said the girl may be able to go there, but no commitment to any specific length of time. It will be based on what insurance will pay (typically 10-11 days). Parents are currently working with Truth Pharm to have her placed in treatment out of state. The Judge and District Attorney are helping with the arrangements. Truth Pharm is also raising the funds to send her.
  • 1/29/16 – Received an update from one of our gals placed in treatment through Truth Pharm and Matty in November in long term treatment in Arizona. She just received her 90 days of sobriety coin! She thanked us. She is our inspiration
  • A Rainmaker took a gal who needed help to the ACC 1/25/16. She did not last 24 hours there.
  • A Rainmaker took a friend to ACC for detox, they were provided 9 days and transferred to YMCA afterwards, but only lasted 3 days before using again.
  • Referred a gentleman to a local suboxone doctor. He said he has three professional friends addicted and not knowing where to turn for help without the risk of losing their jobs.
  • 1/24/16 – One of our Rainmakers with 23 months of sobriety celebrated getting his first apartment in sobriety! Another of our Rainmakers pulled together donations of furniture, household items and groceries and two Rainmakers picked up and delivered these items to him.
  • 1/30/16 – A special mom who is a Truth Pharm Rainmaker and is raising her granddaughter was given some grocery and gas gift cards from a special friend of Truth Pharm’s just out of love and concern.
  • Provided two people in Ohio the Naloxone Program Locator tool.
  • Provided a Broome County woman with a list of suboxone doctors per her request.
  • Referred an individual to STAP for Naloxone training and they made an appointment.
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